Please pray for decreased nausea, finances, wisdom about job and for good blood counts Friday.
Peg
Myeloproliferative has three phases of this disease group. The first two phases are non-cancerous and many people live a normal life with minor adjustments. The third phase however, is a very serious form of cancer that is not treatable and considered terminal. This is the form I have. It is called Myeloproliferative dysplasia, JAK 2, idiopathic fibrosis.This cancer changes your bone marrow into a fibrotic material much like cement. It also causes more work on your spleen and liver which have to monitored very closely. The main problem right now is to find out how much fibrosis has taken over the bone marrow. If you are in the beginning phase of this cancer you may possibly be able to have a stem cell transplant. However, if the disease has progressed too far there is no further treatment. This disease affects your appetite, taste, liver, spleen, causes increased weakness and tiredness consistently, and creates severe anemia, requiring frequent blood transfusions. There is also increased joint pain. Becauses of the Factor V blood disorder that was diagnosed eleven years ago, I have needed an oral chemo to help keep platlets (causes you to clot and can create blood clots if not monitored) at an acceptable level. I have also been on coumadin and aspirin to decrease chances of clots. Now that I have been diagnosed with Myeloproliferative dysplasia, I have had a hard time adjusting the oral chemo due to the low blood counts. The Doctor is having to take me off and on the oral medication trying to walk a fine line between keeping my platelets down and keeping my blood counts up. The life expectance of this disease is 2-5 years. However, we know all things can change and there is always a positive side and people who respond in a positive way.
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We love you, Peggy. You are in our prayers. Getting old really sucks. I tried to get in the blog yesterday, but failed. I just assumed it was my stupidity with the computer stuff. Please keep us updated. We will pray for all the above. Fonda
ReplyDeletePraying for you and your family right now. <><
ReplyDeleteHad blood work done today. It was bad. Will habe to be transfused Sunday. The next big hurdle is to see is MD Anderson will even accept me as patient. If they don't it usually means there is nothing they can do for you.
ReplyDeleteKeep praying. Love, Peg
Peg,
ReplyDeleteWant to let you know that I am praying for you. Andy called me Easter Sunday to let me know. I've been praying ever since. God bless.
Andy's Mom,
Becky
Dear Friends and Family,
ReplyDeleteAs you know I have been diagnosed with Myeloproliferative Dysplasia-JAK 2-idiopathic fibrosis, a cancer that is not curable.
The doctor’s have encouraged me to go to MD Anderson Hospital in Houston for further treatment and testing. In order to do so I need to cover transportation, lodging, medical and food expenses. An account has been set up at Arvest Bank under “Peg Lewis Medical Fund” to assist with this cost.
For more information regarding my health go to http://www.pegslewisrn.blogspot.com/
This blog with also keep you updated on progress regarding health, financial needs and most important, prayer needs.
Prayer needs at this moment include:
My Doctor’s, myself, Tony, my girls and spouses, and financial blessings so we can afford the trip to Houston.
There is also opportunity to donate blood at the Oklahoma Blood Institute on 81st Street in Tulsa. You will need my name and address (450 W. 7th #1402, Tulsa, Ok).
I would appreciate any prayers, blood donation or financial support that you feel lead to give.
In Christ Love, Peg Lewis
Please feel free to pass this on to others who know me but may not have received this email or post to a bulletin board.
To post to the blog site enter the blog site at the above address,
Go to the bottom of the yellow box below others who have commented where there is a box titled “Post Comments”. Please feel free to write me or post comments there.
I became very ill yesterday afternoon and had to go into the hospital early for my transfusions. I think I scared Cristy and Cayti. Cristy took me halfway to Tulsa and met Cayti who took me in to Tulsa the rest of the way. After the first unit I felt much better but I think this is the 'sickest' I have ever felt. Cristy said I looked 'gray'. I have moved my doctor's appointment up to tomorrow, Cayti will go with me and I have several questions to ask him. Please continue to pray for me as my brain feels 'fried' about half the time.
ReplyDeletePeg, Just wanted to bring you a word today...when the medical world says 'there's no cure', is a good opportunity for God to show Himself mighty! Remember when the children of Israel came to the edge of the Red Sea, and Pharoah's army was behind them...it appeared that there was no hope...but God made a way where there seemed to be no way!.
ReplyDeletePeg, we are believing with you and your family that complete healing will be yours, and what an awesome testimony it will be!
Blessings,
Carol Hoke
Sapulpa, Ok