Dear Friends and Family,
As you know I have been diagnosed with Myeloproliferative Dysplasia-JAK 2-idiopathic fibrosis, a cancer that is not curable.
The doctor’s have encouraged me to go to MD Anderson Hospital in Houston for further treatment and testing. In order to do so I need to cover transportation, lodging, medical and food expenses. An account has been set up at Arvest Bank under “Peg Lewis Medical Fund” to assist with this cost.
For more information regarding my health go to http://www.pegslewisrn.blogspot.com/
This blog with also keep you updated on progress regarding health, financial needs and most important, prayer needs.
Prayer needs at this moment include:
My Doctor’s, myself, Tony, my girls and spouses, and financial blessings so we can afford the trip to Houston.
There is also opportunity to donate blood at the Oklahoma Blood Institute on 81st Street in Tulsa. You will need my name and address (450 W. 7th #1402, Tulsa, Ok).
I would appreciate any prayers, blood donation or financial support that you feel lead to give.
In Christ Love, Peg Lewis
Please feel free to pass this on to others who know me but may not have received this email or post to a bulletin board.
To post to the blog site enter the blog site at the above address,
Go to the bottom of the yellow box below others who have commented where there is a box titled “Post Comments”. Please feel free to write me or post comments there.
Myeloproliferative has three phases of this disease group. The first two phases are non-cancerous and many people live a normal life with minor adjustments. The third phase however, is a very serious form of cancer that is not treatable and considered terminal. This is the form I have. It is called Myeloproliferative dysplasia, JAK 2, idiopathic fibrosis.This cancer changes your bone marrow into a fibrotic material much like cement. It also causes more work on your spleen and liver which have to monitored very closely. The main problem right now is to find out how much fibrosis has taken over the bone marrow. If you are in the beginning phase of this cancer you may possibly be able to have a stem cell transplant. However, if the disease has progressed too far there is no further treatment. This disease affects your appetite, taste, liver, spleen, causes increased weakness and tiredness consistently, and creates severe anemia, requiring frequent blood transfusions. There is also increased joint pain. Becauses of the Factor V blood disorder that was diagnosed eleven years ago, I have needed an oral chemo to help keep platlets (causes you to clot and can create blood clots if not monitored) at an acceptable level. I have also been on coumadin and aspirin to decrease chances of clots. Now that I have been diagnosed with Myeloproliferative dysplasia, I have had a hard time adjusting the oral chemo due to the low blood counts. The Doctor is having to take me off and on the oral medication trying to walk a fine line between keeping my platelets down and keeping my blood counts up. The life expectance of this disease is 2-5 years. However, we know all things can change and there is always a positive side and people who respond in a positive way.
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