Myeloproliferative has three phases of this disease group.  The first two phases are non-cancerous and many people live a normal life with minor adjustments.  The third phase however, is a very serious form of cancer that is not treatable and considered terminal.  This is the form I have.  It is called Myeloproliferative dysplasia, JAK 2, idiopathic fibrosis.
This cancer changes your bone marrow into a fibrotic material much like cement.   It also causes more work on your spleen and liver which have to monitored very closely.
 
The main problem right now is to find out how much fibrosis has taken over the bone marrow.  If you are in the beginning phase of this cancer you may possibly be able to have a stem cell transplant.  However, if the disease has progressed too far there is no further treatment.
 
This disease affects your appetite, taste, liver, spleen, causes increased weakness and tiredness consistently, and creates severe anemia, requiring frequent blood transfusions.  There is also increased joint pain. 
 
Becauses of the Factor V blood disorder that was diagnosed eleven years ago, I have needed an oral chemo to help keep platlets (causes you to clot and can create blood clots if not monitored) at an acceptable level.  I have also been on coumadin and aspirin to decrease chances of clots.
 
Now that I have been diagnosed with Myeloproliferative dysplasia, I have had a hard time adjusting the oral chemo due to the low blood counts.  The Doctor is having to take me off and on the oral medication trying to walk a fine line between keeping my platelets down and keeping my blood counts up.
 
The life expectance of this disease is 2-5 years.  However, we know all things can change and there is always a positive side and people who respond in a positive way.

Sunday, January 24, 2010

Peg Lewis went home to the open arms of our Father today, Sunday, Januray 24th, 2010. Peg has been battling cancer and had been at Baylor Medical Center in Dallas for a bone marrow transplant. Peg leaves behind a legacy of love and faith. Peg is survived by her husband, Tony, four daughters, Cayti, Cristy, Ceara, Joella, ten grandchildren, Jaedon, Johnathan, James, Ella, Caeleb, Mia, Jacob, Josh, Olivia and Janelle.
Details for her memorial service will be sent as they become available. If you have pictures you would like to share please send it to the family contact below.
You may make a donation to the National Foundation for Transplants in memorium at www.transplants.org by clicking on 'Make a Gift'.
Family contact: Cayti Burch, 918-284-5293, caytib@sbcglobal.net
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